About Our Sophia

Our Sweet Sophia
She was a beautiful surprise!!
Having already had two amazing children that were teenagers, I was 38 and I had not planned on having any more children. But God’s plan surpassed my own as it should, and God blessed us with a child who carries His heart, His purpose and His plan.
After a lifeless near death at 11 months old, she would later be diagnosed with Lennox-Gastaut Syndrome, Ataxia and Global Developmental Delay as well. Sophia struggled with many types of seizures for many years to follow.
On November 26, 2022, Sophia suffered one of the worst seizures I have witnessed thus far because of its longevity. An electrical storm in her brain that last over an hour...